Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]

Isa, Siti Nor Ismalina and Ishak, Ismarulyusda and Ab Rahman, Azriani and Mohd Saat, Nur Zakiah and Che Din, Normah and Lubis, Syarif Husin and Mohd Ismail, Muhammad Faiz and Mohd Suradi, Nur Riza (2019) Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]. Health Scope, 2. pp. 430-435. ISSN 2735-0649


Families of children with special needs (CWSN) experience many difficulties and are socioeconomically disadvantaged when compared to families of typical children. The burden of care, social, financial and other stressful situations are considered to be crucial in determining the quality of life (QoL) of the families of CWSN. The purpose of this study was to explore the psychosocial constraints faced by caregivers of CWSN in Kelantan, Malaysia which affected their QoL. A qualitative study was conducted utilizing the phenomenology approach. A total of 22 participants were recruited for face-to-face, in-depth interviews. The sample was comprised of caregivers (n = 14), community-based rehabilitation trainers (n = 4), special education teachers (n = 3), and welfare officer (n = 1). Each interview was recorded on audio-tape. The recordings were transcribed and thematic content analysis was used to create codes and identify emerging themes. It was found that psychosocial constraints experienced by the caregivers were associated with common themes such as psychological factors, accessibility to services, socio cultural issues, social supports, and system and policy. Thus, intervention strategies to improve the QoL of caregivers of CWSN should target the family unit and consider the psychosocial factors of the caregivers.


Item Type: Article
Email / ID Num.
Isa, Siti Nor Ismalina
Ishak, Ismarulyusda
Ab Rahman, Azriani
Mohd Saat, Nur Zakiah
Che Din, Normah
Lubis, Syarif Husin
Mohd Ismail, Muhammad Faiz
Mohd Suradi, Nur Riza
Subjects: R Medicine > RA Public aspects of medicine > Public health. Hygiene. Preventive Medicine > Mental health. Mental illness prevention
R Medicine > RJ Pediatrics > Child Health. Child health services
R Medicine > RM Therapeutics. Pharmacology > Physical medicine. Physical therapy. Including massage, exercise, occupational therapy, hydrotherapy, phototherapy, radiotherapy, thermotherapy, electrotherapy
Divisions: Universiti Teknologi MARA, Selangor > Puncak Alam Campus > Faculty of Health Sciences
Journal or Publication Title: Health Scope
UiTM Journal Collections: Others > Healthscope
ISSN: 2735-0649
Volume: 2
Page Range: pp. 430-435
Keywords: Caregivers, children with special needs, psychosocial, qualitative study
Date: September 2019
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